Open Source Clinical Enterprise Data Warehouse (EDW) Data Browser (Leaf)
Problem statement
Academic medical centers and health systems are increasingly challenged with supporting appropriate secondary uses of data from a multitude of sources. To that end, the UW Medicine Enterprise Data Warehouse (EDW) has emerged as a central port for all data that can include clinical, research, administrative, financial and other data types. Although EDW’s have been popular and successful in providing a single stop for data, they are often non-self service and require an informatician or clinical informatics expert to access.
Project description
We have developed an easy to use, self service web-based tool for querying, browsing and extracting clinical cohorts from the UW Medicine EDW, called Leaf. Leaf enables querying by data dictionaries or ontologies and allows both de-identified and identified access to patient data and grants access to these datasets in a compliant manner. While Leaf provides basic visualizations, it contains robust tools for exporting directly to REDCap projects. The users of Leaf include both quality improvement and research investigators and has been developed using an Agile development process with a soft production rollout to identify and address software, support and data quality concerns.
Alignment to program objectives
TODO see here
Contact person
| Point person (github handle) | Site | Program Director |
|---|---|---|
| Nic Dobbins (@ndobb) | UW | Sean Mooney (@sdmooney) |
Leads
| Lead(s) (github handle) | Site |
|---|---|
| Kari Stephens (@kstephen0909) | UW |
| Nic Dobbins (@ndobb) | UW |
| Sean Mooney (@sdmooney) | UW |
Team members
Team members can be found here
Repositories
Leaf Code: here
Deliverables
-Preliminary Pilot Plan; document that supports successful implemenation of pilot.
-Execute Leaf software license
-Leaf Code
-The Leaf software working against live UW, Wash U, and Data QUEST data as demonstrations of cross-institutional data querying capability, enabled in the cloud.
Milestones
View the project milestones here
Evaluation
View the Evaluation component here
Education
View the education component here
Get involved
View the engagement component here
Working documents
Team collaborative working folder can be found here
Slack room
#leaf-edw is accessible to participants that have been onboarded